Taking the Scenic Route

oht. thrush. zane testing

14th March 2006

oht. thrush. zane testing

oht

thrush improving a lot!  i want to thank the more experienced mamas who pointed out what i couldn’t see initially.  not only is her tongue a lot better, but she isn’t screaming all the time and latching on better.  i think 1 more day would have led to a nursing strike, so i am relieved to see the improvement.  sleep is better too.  gassieness is also better.  not out of the woods on it, but moving in the right direction!

zane testing news:  i left a message yesterday, she called back today, he will be tested (hearing) tomorrow.  this is a vast improvement to previous experiences!  if, for some reason, she can’t get him tested (because he hates having his ears touched, unless it is his idea) she has the power to just use the newborn testing (which he passed) and parental reporting to clear him of hearing issues.  considering he can pronounce letters (if said individually) clearly, and can hear me open the fridge from his room, there is a pretty good indication his hearing is just fine.  the people listening for things like lisps thought his actual speech production was close enough to ‘on target’ that it wouldn’t be something worth addressing at this point.  If he still has problems later (which he might, both Zach & Steve had problems as kids in this area) then we will address it.  It isn’t bad enough right now to interfere with people understanding him…he has more immediate needs elsewhere.

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13th March 2006

Monday March 13, 2006

We have thrush. Zora is VERY cranky, nursing is uncomfortable for both of us.  She is just starting to have a bit of a yeast diaper rash & I think Zane’s tush is bothering him too because he can’t seem to keep his hands off his butt. 

I went to the elem school today to fill out ‘consent to test’ paperwork.  They told me to come without Zane.  I ended up going by myself because Zora would not stop screaming and didn’t want to nurse.  I got there and they asked if I happened to bring Zane because they forgot that he had to be cleared in a hearing test first.  I ask if there is somebody who specializes in this, they tell me the school nurse will do it.  I am skeptical that it can be accomplished, but since they won’t do anything else until he passes this test I tell her I will go get Zane today instead of rescheduling.  So I call home so Zach can get Zane ready for me to pick him up..  I accidentally wake up a FINALLY sleeping Zora with the ringing phone.  arg!  I pick up Zane and bring him back.  Surprise, surprise, they couldn’t do it and gave me a number to call to make an appointment with a specialist.  (what I asked for in the first place)  So, now I am waiting for a call back from that person, at another school in the district, to do the hearing test before I can sign the ‘consent to test’ paperwork.  *sigh*  I did get an enrollment form so he can be entered into the computer system for the district…whoopie.  I am still planning on homeschooling, but it is just not worth it to mention it until I get past the testing. 

I keep hearing (and using) the term ’services’.  Zach asked me what that meant exactly.  I realized at that moment I don’t have an exact answer to that.  It is sort of a vague ‘end of the rainbow’ concept….sort a prize for having an atypical kid.  I assume it is therapy of some kind, but I really have no idea what kind of therapy it is.  I guess that is why I am going through all this…if I knew what therapies they use, I would just do them and skip all this inconvenient, annoying, bullshit that is an institutional system.  That is part of the reason I am doing a duel attack, getting him started to see what the school system offers, but also going to the WSU Speech, Language, Communication Lab/Clinic so that I get some help sooner (“services”. lol) .  It seems like WSU is as much about helping the parents understand and educating the parents, where the school system seems to not really validate the parents as teachers as much.  They school seems much more rigid in there being a particular order they do everything, and they won’t really tell you what that is.  They will only tell you what you need to do for them, and after you are done, they will tell you the next person to call.   

Friday we have the rescheduled Peds appointment for Zane.  (the car tire blew on the way out there last time, making us too late to have both kids seen).  I wonder what that will bring. 

I think I might try again to get a hold of the developmental ped too.  I haven’t even been able to determine yet if our insurance will cover it without a referral (or with one for that matter, although I assume it would be covered with one), so I guess I will be on hold for a while tomorrow while I try and determine who they will cover and what process I need to go through.  I am not relying on what the school district people tell me because I don’t think they know as well as they think they do. 

On the food front:  I found a brand of Alphabet shape pasta that are gluten/dairy free.  I also found one brand of chefboyardee type canned spaghetti.  Both are pretty pricey, but at least they exist.  I am pretty sure Dillons (Kroger) will order food for you if you request it, and then I could use my food stamps on it.  I might even be able to do that with the online places, but I have no idea at this point.  Tomato sauce on pasta is about the only vegetable I can consistently get into Zane, so it is important for me to find something that is similar enough that he will at least try it.  I long for the days I could feed him broccoli and spinach and he happily ate it.  *sigh*  I am finding that, overall, it will be easier to do the gluten-free part than dairy-free because of celiacs.  A lot of the dairy free uses soy as a substitute, but that won’t work if we are going to try wheat-soy-barley free (and probably corn free right at first at least…that is not as allergenic, but I see a lot of recommendations to cut that also and then add it back in to see if it is an ok food)  I know this is do-able.  My cousins did it with their child in the 80s, long before there were ANY specialty products out there.  It is a PITA, but I will figure this out.  I know from my onion allergies that it is the hidden ingredients that kick your butt. 

OK, now I need to get to the laundry.  I am going to have to vinegar rinse everything for a while because of the yeast.  I haven’t cloth diapered in a week because I haven’t been able to keep up on laundry while trying to get the house in order, nurse a baby, entertain Zane, and be on hold on the telephone.  lol. Dang, no wonder I am so tired!

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11th March 2006

Saturday March 11, 2006

I haven’t written much lately because my brain is just a huge jumble right now.  I am a bit overwhelmed to say the least.  My brain is buzzing and I can’t really put everything in order quite yet.

The things I am thinking about:

  1. Zane’s diagnosis process.  What is going on with him.  Is is *just* a language processing problem, is it that Semantic-Pragmatic disorder I read about?  It sure fits, but am I missing something?  Is he on the Autism Spectrum someplace…is it actual Autism?  I discovered this week that what I thought constituted Autism wasn’t entirely accurate.  I think of the stereotype, like Rainman.  That isn’t the only way it presents itself.  There are a whole range of things, some he fits, some he doesn’t.  A lot is someplace in the middle…he sort of fits, but it depends on how you define the questions.
  2. There is a possibility that a Gluten and Dairy free diet would help him.  Food allergies/sensitivities can present like ASD, and some kids with ASD and language disorders show marked improvement with the diet.  My family has dairy allergies/sensitivities (including me…not as much now, but as a child I had a real problem with dairy), there is a relative with wheat, soy, dairy, and dye allergies (a cousin’s child) and other various digestive problems, including IBS.  All of these are ‘things to look for’ when determining whether or not this diet can be beneficial.  Another thing I keep hearing is that we often crave foods we have sensitivities to.  I crave dairy in a major way.  I also gravitate towards carbs….wheat & soy especially.  Zane’s diet is very dominated by dairy (yogurt & cheese) and wheat & soy products (bread, noodles, crackers, cereal).  About the only thing I can think of that he eats on a regular basis that isn’t one of those two things is fruit, especially bananas, but also grapes, raisins, peaches, apples.  Sadly, I think the fruits he likes are a major thing to avoid in a Feingold diet (a similar diet theory, but targeting different food sensitivities).  I can see that I need to try this.  I will try this, but honestly I don’t want to.  The stress is making me crave things even more and the idea of going a few weeks to test out the diet and see if it has an effect is not something I am looking forward to.  I know what it means to avoid ‘normal’ foods and I am scared it will make a difference because it means a lifetime of PITA situations.  I am more scared it won’t make a difference.  Food in tolerances are a PITA, but they are manageable.
  3. When we do try the Gluten/dairy free diet, what is Zane going to eat?  Can I deal with two weeks or more of him hungry and refusing to eat because it isn’t something he likes.  (I know, most kids will eventually eat, but he doesn’t.  He would rather starve than eat certain foods)  His food choices are already pretty limited and this diet would knock 90% of them out.  I *might* be able to find some alternatives (like gluten free bread/pasta), but there is no way of knowing if he will actually eat it.  I hope that hot sauce is gluten/dairy free or we are REALLY screwed.  Ugh.  The logistics of doing the diet seem like a huge mountain right now.
  4. Just trying to navigate how to get services is enough to send somebody into a nervous breakdown.  Endless phone tag, differing messages of what the process is, very long waits for people, and insurance that is spotty at best.  The college can help give us an unofficial diagnosis, and can help us set up therapies that will help him.  I am more interested in getting help than having an official dx at this point, but the therapy costs money.  It is on a sliding scale, but still is going to really squeeze us.
  5. I do not know what to do about Zora’s immunizations.  I started going back into the literature and there is so much conflicting information.  Add to this the nagging question of whether or not Zane’s problems are the result of heavy metal poisoning and other toxins that are in the vaxes.  How do you weigh the risks vs. supposed benefits.  Am I going to lose my pediatrician if I refuse to vax?  I know of a ped I can go to, but I really like her.
  6. Zach had an interview this week that went well.  It was for a credit union and sounded like the perfect job.  He would be developing both their Internet and intranet presence.  It is complicated, but would make great use of both his technical and creative skills.  However, we got a call after the interview saying that if we could get our credit straightened out, they would consider him, but they can’t how it stands right now.  That really, really sucks.  They are sending us a copy of the things they want cleared up and we will see.  I don’t have a lot of hope that we can fix it with the money we have right now though.
  7. The house is slowly moving from “I hope nobody shows up at the door” toward “embarrassing, but livable”.   It will be a while before it is truly ’clean’, but if I can just get it out of crisis cleaning stage and into a maintenance mode I will be happy.   It is taking a lot of effort and time, and I am not gaining back the energy at a rate I want to yet.  Zora is still wanting to nurse alot, so I am having to sit and just be for a while, so the housework is taking more time than I want it to.
  8. I am not able to get to my knitting like I want to.  That frustrates me.
  9. Zach is mid-semester and the work load is starting that uphill climb now.  It isn’t too intense yet, but it is coming.  He has one class where the professor isn’t very clear on what he wants and that is something that drives Zach up a wall.
  10. I am gaining weight.  I am eating from stress.  I recognize it and yet feel like I am unable to stop.  I feel like I am in a constant state of PMS.  I don’t know if it is the bcp or just the immediate life events, but I feel really raw right now.  I have to keep it together and it seems like work to crawl out of bed right now.

maybe I will feel better having written this out.  So far, no such luck.  lol.

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10th March 2006

Friday March 10, 2006

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9th March 2006

Thursday March 9, 2006


 
Published on Wednesday, September 1, 2004 by the Free Press (Columbus, Ohio)
Gott Mit Uns: On Bush and Hitler’s Rhetoric
by Bob Fitrakis
 

President Bush told Texas evangelist James Robinson that “I feel like God wants me to run for President. I can’t explain it, but I sense my country is going to need me. Something is going to happen . . . I know it won’t be easy on me or my family, but God wants me to do it.”

With 49.3% of New York City residents in a recent Zogby poll believing that some people in our government knew of the 911 attack in advance and allowed it to happen, the President as right-wing evangelical prophet is under siege in his Madison Square Garden bunker. Convention watchers should take careful note of the theocratic nationalist rhetoric at the Republican convention this week.

When was the last time a Western nation had a leader so obsessed with God and claiming God was on our side?

If you answered Adolph Hitler and Nazi Germany, you’re correct. Nothing can be more misleading than to categorize Hitler as a barbaric pagan or Godless totalitarian, like Stalin.

Both Bush and Hitler believe that they were chosen by God to lead their nations. With Hitler boldly proclaiming, before launching his doctrine of preventive war against all of Europe, that “I would like to thank Providence and the Almighty for choosing me of all people to be allowed to wage this battle for Germany.”

“I follow the path assigned to me by Providence with the instinctive sureness of a sleepwalker,” Hitler said.

Hitler stated in February 1940, “But there is something else I believe, and that is that there is a God. . . . And this God again has blessed our efforts during the past 13 years.” After the Iraqi invasion, Bush announced, “God told me to strike at al Qaeda and I struck them, and then he instructed me to strike at Saddam, which I did . . . .” Neither the similarity between Hitler and Bush’s religious rhetoric nor the fact that the current President’s grandfather was called “Hitler’s Angel” by the New York Tribune for his financing of the Fuher’s rise to power is lost on Europeans.

Pat Robertson called Bush “a prophet” and Ralph Reed claimed, after the 9/11 attack, God picked the President because “he knew George Bush had the ability to lead in this compelling way.” Hitler told the German people in March 1936, “Providence withdrew its protection and our people fell, fell as scarcely any other people heretofore. In this deep misery we again learn to pray. . . . The mercy of the Lord slowly returns to us again. And in this hour we sink to our knees and beseech our almighty God that he may bless us, that He may give us the strength to carry on the struggle for the freedom, the future, the honor, and the peace of our people. So help us God.”

At the beginning of Hitler’s crusade on April 12, 1922, he spelled out his version of the warmongering Jesus: “My feeling as a Christian points me to my Lord and Savior as a fighter.” Randall Balmer in The Nation, noted that “Bush’s God is the eye-for-an- eye God of the Hebrew prophets and the Book of Revelation, the God of vengeance and retribution.”

As Bush has invoked the cross of Jesus to simultaneously attack the Islamic and Arab world, Hitler also saw the value of exalting the cross while waging endless war: “To be sure, our Christian Cross should be the most exalted symbol of the struggle against the Jewish-Marxist-Bolshevik spirit.

Like Bush-ites, Hitler was fond of invoking the Ten Commandments as the foundation of Nazi Germany: “The Ten Commandments are a code of living to which there’s no refutation. These precepts correspond to irrefragable needs of the human soul.”

But if you ever wondered where Bush got his idea for so-called “faith-based initiatives” you need only consult Hitler’s January 30, 1939 speech to the Reichstag. The Fuhrer begins, “Amongst the accusations which are directed against Germany in the so-called democracy is the charge that the National Socialist State is hostile to religion.”

Hitler goes on to document how much “public monies derived from taxation through the organs of the State have been placed at the disposal of both churches [Protestant and Catholic].” Hitler gave nearly 1.8 billion Reichsmarks between 1933-1938 directly to the Christian churches. In 1938 alone, he bragged that the Nazis gave half a billion Reichsmarks from the national government and an additional 92 million Reichsmarks from the Nazi-controlled German states and parish associations.

Hitler made the intent of his faith-based initiative clear when he noted, “With a tenth of our budget for religion, we would thus have a Church devoted to the State and of unshakable loyalty. . . . the little sects, which receive only a few hundred thousand marks, are devoted to us body and soul.”

Bush’s assertion that “I trust God speaks through me. Without that, I couldn’t do my job” brings to mind God as a dull-witted, cognitively-impaired nationalist unable to utter a simple declarative sentence who spends his time preaching “blessed are the warmongers and profit-makers.”

Bob Fitrakis is the Editor of the Free Press (freepress.org), a political science professor, attorney and co-author with Harvey Wasserman of George W. Bush vs. the Superpower of Peace.

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8th March 2006

Wednesday March 8, 2006

Visited States

create your own visited states map

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8th March 2006

Wednesday March 8, 2006

Spent much of today on the phone trying to get Zane in to be evaluated.  (have played phone tag the last week or two with a number of people…I had enough of that!)  The place I wanted to have him evaluated doesn’t accept the insurance for residents in this county.  I have heard that it can be well over $500-$1000 for the testing if not paid by insurance.  I asked the lady on the phone which agency she recommended that would accept my insurance…she gave me two places, but something in her voice said that she wouldn’t really recommend either of them.  I decided to call the college and see if they had somebody they recommend.  As it turns out, they have people there that are qualified to do the testing.  I got the impression it wouldn’t be a 3 month wait either, but it would cost $150.  *sigh*  They have discounted rates for therapy, but not the initial evaluation.  They don’t accept the insurance either.

I think that is the route we are going to go though.  We will make it work somehow.  I trust the people there.  I noticed in the bios of some of the profs, there are several who specialize in what I suspect Zane to have.  Plus, they have classes (for the Grad programs) in those specific things too.  (as well as Autism Spectrum Disorder, but that is more common, so it was more notable that they had the language processing disorder specialists I might need)  The person on the phone sounded like she was trying not to sound excited at the prospect of seeing a pragmatic-semantic disorder kid. (lol.  I totally understand the intellectual curiosity aspect…sort of reminded me of when doctors would get really interested when I said I had Endo as a teen…it is one of those things you read about in the literature, but don’t see a lot IRL)   I am confident that they will understand the subtle differences between the S-P stuff and the other various ASD dx.   

They were also just so much nicer on the phone than anybody I had run into.  (although the school psychologist sounded nice, just fairly rushed)  I felt like a person rather than a number.  I guess we will see if that trend continues.  Another nice thing, that is just incidental, the place this testing would take place at is almost within walking distance.  Not a deciding factor by any means, but cool none the less.

We are going to go in next Monday to the elementary school to sign the paperwork that will allow the testing to begin through the school district.  Then, we will schedule another hearing test, and then they will try to get us set up for an evaluation, but will send us to somebody else, again, for an ‘official’ diagnosis.  (if I understood her correctly).  By going through the college, I think I will speed this up by around 6-12 months to get a diagnosis in place and start getting some help. 

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8th March 2006

Wednesday March 8, 2006

I made a new discovery.  His name is Joshus Radin.  Such a beautiful sound! 

On his site he has streaming music…simple, clean, mellow.  “winter” is insanely beautiful

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6th March 2006

Monday March 6, 2006

 

 

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3rd March 2006

Friday March 3, 2006

You might be asking yourself if you are at the right blog right now.  Yes, this is Nerd Central, but we can’t help but get caught up in the excitement.  So, here it is…

Go Shocks!

Go Shockers . com

Road to the MVC Title

 

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  • Zane's age

  • Zane is 22 years, 3 months, and 30 days old
  • Zora's age

  • Zora is 18 years, 4 months, and 3 days old
  • Random Quote

  • I cannot imagine Jesus striking a child…unless, of course, the child runs into the traffic of Nazareth. After all, with those asses pulling carts and stuff, a child could get hurt!

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