Taking the Scenic Route

Hippotherapy ends

8th April 2008

Hippotherapy ends

The interview we did that was supposed to air on Monday hasn’t aired yet.  I have a feeling it is because the major news story around here took up wayyy more airtime than originally planned, because WE WON!  ROCK CHALK JAYHAWK!  Ok, so it isn’t “our” team, exactly.  (probably 3rd on our list behind WSU and KSU), but it is still very, very cool.  I don’t watch a lot of sports, but we tuned in for the finals.  It was truly one of the best games I have ever seen.  My husband was reminded last night that the geeky theatre person he married was a cheerleader in high school.  lol.  By the last half of the game, and through overtime I was unable to actually SIT to watch the game, and was up in front of the tv cheering.  Zora, in her cuteness, got her little step stool and stood next to me, echoing every cheer and clapping along.  It was really fun. Zach & Zane were even standing up watching by the nail biting end.

Now, in real life, yesterday Zane had his last hippotherapy session.  Zach came along because he hadn’t seen him on a horse in person, and understood totally why I was so sad to see that go.  Zora was unable to really handle it well because she wanted to be on the horses too.  She kept trying to put on the helmets and head out to the ring.  I finally had to take her out of the building and visit the stables next door to keep her screaming from startling the horses.  She did get to pet a few horse noses and sort of brush a horse through the bars in the stables, so she was temporarily satisfied. 

The hippotherapy ended much sooner than we were planning.  The whole situation felt like we had been dropped in the middle of a soap opera and we barely knew the players.  The board (I assume of the stables/farm) met and decided, for reasons that make no real sense, to fire the main person who started the program.  (we think it might be because the head person wanted to keep it small and affordable to kids, and the board wanted to make money off of it).  When they fired her, all of the therapists (except maybe one, last we heard) quit because of some of the policies they wanted to put in place.  Last week, before I heard of any of this, I could tell something was off when they brought the wrong horse and the handler didn’t seem nearly as attentive.  Now I know why.  The teams there were very well trained to ensure the safety of everyone.  The personality of the horses are taken into account in what they do with them, and the horses, to this point, were treated very gently (no spurs, no whips…more of a horse whisperer type management). 

The new people think the horses should basically be interchangeable, and they want to streamline what the kids do…make the program “one size fits all”, and they want to reduce the number of people around the child and just have random handlers for the horses.  They are hiring people that know about horseback riding (but more “cowboy” than “therapy”), but not about autism/CP/Downs Syndrome, ect, and are more about teaching riding than using the horses therapeutically.  To top it all off, they sent out a passive aggressive little letter to all of the parents.  I didn’t really know what was going on before that, but I was very unhappy with the whole, unprofessional, tone of the letter and started asking around to see what the heck was going on.  After talking to several people, I don’t feel like it is a safe, nurturing place for Zane, and I decided we are done.  For Zane’s sake, and the fact his OT was there one last time, we went ahead and had a last session where he knew it was the last one to help with the transisition away from it.   If, by some chance, the group starts up someplace else (not sure if this is possible, but they have a well working team already formed and have been working together for many, many years) we will follow them there.  Might be wishful thinking, but I am so sad to see such a good program implode on itself.  Around here people don’t just leave jobs like that, and if the whole team leaves, there is something fundamentally wrong.  I am not taking any chances.

In other news, Zane started the additional ST session that I was working to get him when the OT left Heartsprings, so that was good.  Everybody, including the ST was tired from staying up too late to watch the game though.  (I bet the coffee sales in Kansas went up dramatically this morning because everyone I saw today looked a little bleary eyed) Tomorrow we start up OT at her new office.

And finally, Zach had a big phone interview this afternoon.  He felt like it went fine, but naturally keeps replaying “I should have said…”, but that is pretty normal.  It is for the job that would have us moving to the west coast if he gets it.  There are some great things about this job,  but moving so far away would be challenging, especially with the cost of living being so much higher.

posted in Autistic Life, OT/Sensory, Zane | 3 Comments

5th April 2008

The second interview

I didn’t post this right away because I was a bit frustrated with how the interview came out.  They wanted it early in the day so they had time to edit it for the news…it was too early for our brains to work properly and it just wasn’t terribly smooth and by the time we saw it we were exhausted and weren’t looking at it objectively.

Although I really liked the introductory sentence,  the phrase “battle” with the disorder made me a little unhappy. *cringe*   The fact they put “Has an autistic son” under our names (the neurodiversity phrasing instead of the “cure” phrasing) was a good thing, although I sort of doubt it was intentional.  lol.  

I mostly wanted our last names left out of it so I could share it on the internet and I don’t use last names out in cyberspace.  I guess I should have phrased it differently.  It is sort of because of the stigma of autism, but it is mostly because dh is on a job search and we want his publications and professional stuff to come up on google searches instead of an interview on autism.

The guy that did the interview seemed like what he was wanting was for us to say how autism (negatively) affected our marriage, which is a good angle to go with because 80% of people end up divorced when their child is diagnosed with autism. (and it isn’t a statistic that is quoted as often as many others)  However, our marriage is really good, and if anything it has brought us closer together. I guess being a good partnership isn’t very exciting.  lol.  About the only thing we could say as far as stresses on our marriage was the financial stress.  (If we made 100K a year our lifestyle wouldn’t even change much because all of the sliding scale amounts would just keep sliding up.  It is sort of depressing.) 

I loved the shots of Zach playing with Zane.  That was great and made it all worth it.

posted in Autism, Autistic Life, In the News, Zane | 6 Comments

3rd April 2008

Pictures, “Next Level”

1 silly daddy + 2 kids + 3 balls = a fun afternoon

x2008-04-02 012.jpg

x2008-04-02 014.jpg

x2008-04-02 024.jpg

x2008-04-02 025.jpg

notice anything different?

x2008-04-02 030.jpg

Zane decided to design a game where he would lay sticks down (declaring them “levels”….level 1, level 2…ect) and try to get the ball into the bucket from the different levels. (saying “Next Level” each time he finished)

x2008-04-02 059.jpg

x2008-04-02 066.jpg

and a cheering section forms.  (Zora very carefully crossed her legs when she saw Daddy sitting that way)

x2008-04-02 076.jpg

x2008-04-02 079.jpg

Evaluating whether or not to move the sticks because he is having problems making the basket.

x2008-04-02 080.jpg

x2008-04-02 082.jpg

level 6 required creativity, since he was out of sticks.  He stood on top of the sand and water table for this final challenging level.

x2008-04-02 089.jpg

I have a great family!

posted in Autistic Life, Echolalia, Zane, Zora | 6 Comments

3rd April 2008

Zora, Fashionista and Dog Lover

Zora and the dogs on the other side of the fence:  the obsession continues

video here: http://video.xanga.com/Jennifer_Z/322f5702171/video.html?rewrite=true#filmstriptitle

  

Zora, the fashinista and entertainer

 x2008-04-01 006.jpg

x2008-04-01 013.jpg

video here:  http://video.xanga.com/Jennifer_Z/ac0b0702174/video.html

 

 

posted in Zora | 1 Comment

3rd April 2008

Autism online

When 1 in 150 is really 1 in 67

Autism, Services, and Co-morbidity: Insights from Kansas. PART I

Autism, Services, and Co-morbidity: Insights from Kansas. PART II

 

The Next Big Autism Bomb:  Are 1 in 50 Kids Potentially At Risk?

Adults more tolerant when informed about Autism diagnosis?

 

posted in Autism | 1 Comment

  • Zane's age

  • Zane is 22 years, 3 months, and 23 days old
  • Zora's age

  • Zora is 18 years, 3 months, and 27 days old
  • Random Quote

  • You can’t degeekify the geeks, but you can be a polite geek — Temple Grandin, PhD, Autistic

  • Subscribe


 Log in