Taking the Scenic Route

Kick me if I say I want popcorn. It would be cheaper.

16th November 2007

Kick me if I say I want popcorn. It would be cheaper.

This week my jaw went from dull ache to shooting pain.  It was my lower jaw, and I couldn’t figure out what was going on because the area that actually hurt in my mouth was behind my molars.  It felt like I had a tooth coming in or a shard from my wisdom teeth coming up, except that it has been 21, almost 22 years since I had my wisdom teeth pulled, so it seemed unlikely.  I assumed it was deferred pain since the spot that hurt the worst didn’t make sense, but my whole left lower jaw, all the way to my ear and behind my ear was in excruciating pain.  I hated going to the dentist and was worried it would lead to a trip to the oral surgeon.

Took xrays (which suck because it was so far back and I have a bad gag reflex anyway) and he poked around in my mouth for a while, as confused as I was.  Then I hear an “ah hah!” and a “this is going to hurt a little bit”  I managed to stay on the chair through sheer force of will.  He dug out a popcorn hull behind my molar.  After he dug it out (Too much info coming…skip this if queasy…) he showed me the spot where it was swollen and puss came out.  ewwww ewwww EWWWWW!  It had a major infection.  I  felt like a big ole idiot.  All the problems in my mouth and a POPCORN HULL is what finally breaks me and sends me to the dentist.  Ah man. 

I was sent home with a funky toothpick holder (put in toothpick tip, break off the rest) to help clean the area out while it heals up and an antibiotic script for the next while to get rid of the infection.  My mouth tasted awful too.  yuck!

posted in Health, Me | Comments Off

16th November 2007

Job search

Zach’s contract is up in May.  Although he is interested in picking up a contract for teaching, he is also feeling like doing something else. At any rate, a contract hasn’t been offered yet, and might not be because of the change in the department (the CS department is moving from the Liberal Arts college to the Engineering college).  So, we have been looking at options.  Today he had a phone interview with a local company that went well.  The job is downtown, but it sounds interesting.  They have asked for a second interview in person, including the top people at the company.  The pay would be better than teaching.  The environment sounds good too.  I guess we will see.  I hope we are able to maintain clarity as we decide what to do.  (assuming there will be a choice)

posted in Uncategorized | Comments Off

16th November 2007

I HAPPY!

All. day. long., Zane has been asking for an ice cream cone.  He was obsessed.  We let him have one earlier in the day, but we told him no more ice cream today about, oh, a million times or so.  (only to have him ask again about 30 seconds later).  By the afternoon Zach was getting really frustrated and went on a bit of a rant…”NO, N-O, NO more ice cream.  Don’t ask again.  NO.  N-O.  No more ice cream today at all.”  Zane finally got it, but started crying, really hard.  He came to me, crying, and crawled onto my lap.  I said “that wasn’t what you wanted to hear” and “I know you want ice cream, but not today”, ect.  Zane, after hugging me a bit, sat up, looked at me and said “I sad”.  I was stunned. It is the absolute first time he has ever verbalized a feeling.  Totally unprompted too.  AND he said “I” instead of “Zane”.  In stunned silence, I pulled him to me to hug him again while I tried to gather myself (because clapping and jumping up and down would have been a slight bit inappropriate) and reiterated what he said “I know you’re sad, I’m sorry, it is hard to be sad”…and couldn’t stop myself…”but that was a really good job of using your words”.  Probably NOT what he wanted to hear.

posted in Autistic Life, Language Development, Zane | 2 Comments

15th November 2007

We have tickets!

From the website:

This year’s Kansas Dance Festival wiill feature the world premiere of beyond.words, a moving work about autism, created by guest artists Andrew Palermo and Taye Diggs. Another highlight of this year’s festival will be the dancers from the National Taiwan College of Physical Education. Other guests include: University of Central Oklahoma, Kansas State University, Friends University, and University of Oklahoma. The WSU dancers are happy to share the stage with all the visiting artists this year. Don’t miss this exciting festival! Performances are Friday & Saturday, November 16 & 17, 7:30 pm, Miller Concert Hall. For tickets, call: 316-978-3233.

http://finearts.wichita.edu/performing/dance/KDF/index.htm

We have tickets for Saturday Night and my mom is coming up to watch the kids.  _clap

posted in Uncategorized | 1 Comment

14th November 2007

Sunshine Girl

For some reason I forgot to post these when they happened.

Here ya go…

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posted in Zora | 4 Comments

13th November 2007

Advocacy, the easy way

Ok, so I have no love for Autism Speaks, but in this case, I totally agree with them. 

Bush vetoed an important bill that had Autism funding on it, and there is a move to override the veto.  If you have a second, Autism Speaks has a form that will automatically direct your email to the proper representative to let them know you support the override.

 http://www.autismwalk.org/site/MessageViewer?em_id=50761.0&dlv_id=49222

 

Edited to add a link to the bill info.

http://www.govtrack.us/congress/bill.xpd?bill=h110-3043

http://thomas.loc.gov/cgi-bin/bdquery/z?d110:H.R.3043:

posted in Autism | 5 Comments

11th November 2007

Homeschooling books

Last week when we went to the library, I was searching for the John Holt book “How Children Learn“.  I have a tattered paperback copy of “How Children Fail” that has been a part of my collection since my freshman year in college.  (not sure if it was for the intro to ed or the exceptional children class…both were taught by the same guy).  I remember when I first read the book being really confused by it.  It seemed like it was actually against public education, but I was nervous to present that view in the class because, surely, it couldn’t be what the point of it was supposed to be in a class meaning to educate teachers.  How ironic is that.  So afraid of giving the wrong answer I didn’t participate in the discussion.  I actually remember the book well, but don’t remember the discussion at all, which leads me to think that I might have skipped class that day, because it seems like something I would have remembered.  I understand now why it was required reading, especially in the context of the college I went to (small liberal arts college that really challenged students and was populated with professors that spent their college years as 60s radicals).  I wish I could have appreciated it at the time, but, alas, I wasn’t ready for it yet.

Anyway, all the books by John Holt were checked out.  I was ready to leave, when another book on my “list” caught my eye “Homeschooling our Children, Unschooling Ourselves” by Alison McKee.  Even though I had wanted to wait to read John Holt before I read this one, since her philosophy is based on John Holt, I put it in my stack of books and it has been on my desk waiting for me to dig in.  In typical fashion, I read a few paragraphs yesterday, but it intrigued me enough to finish it off today.  I was really relating to it much more than I expected. 

She works in the school in a capacity similar to a Speech Therapist, except dealing with vision (low vision and blind kids) and was, therefore, immersed in several different types of public school environments.  She describes several frustrating instances where learning is curbed in schools.  My real frustration was that I saw that, and much more, in the few weeks I was with Zane.  I am really grateful that I did go with Zane those few weeks.  I would have always wondered if I was over exaggerating the possible problems if I hadn’t gone.  I discovered I was, instead, minimizing the problems.  They were much greater, and much more fundamental than I could have conceived.

Instead, I discovered that despite the best efforts of the people working there, the system itself was just too fundamentally flawed to be able to really nurture Zane’s learning differences.  There were major, insurmountable, obstacles that no amount of accommodations could address.  I remember, at one point, when I was working on the list of possible accommodations, that I almost felt lucky to have a bit more control over his education…that because they are required by law to follow an IEP, there was a lot better chance of getting a more appropriate education than was afforded regular education students.  His learning differences were diagnosed and categorized so that they had to be recognized.  I felt like it was unfair that only those whose differences were so notable got that luxury, and that it should be afforded to every student.  Every person should be taught in a way that best accommodates their learning style.  

I am only beginning to realize the challenges that are set before me as I begin to homeschool.  I struggle deeply with what experts say about autism and how to teach kids with autism and how that differs from my real life experience of it.  They say ROUTINE, ROUTINE, ROUTINE.  That people with autism thrive on extreme routine.  Now, I can agree to this to a point.  In an unfamiliar environment, where there are more complex, unknown social requirements, routine helps a great deal with his anxiety.  In a classroom, a group, or a more formal setting, routine helps give him scaffolding to be able to cope. 

However, in everyday life, routine bores the snot out of him.  In learning, rote learning is absolutely the worst thing you can do.  Once he has it, he has it, and he does not want to waste his time looking at it again.  If you try to push a bit to get him to “finish this page” or “finish this lesson” you will be confronted with a very angry kid who will not want to even START that subject for days on end because he doesn’t want to get stuck “finishing” after he already knows it.  He taught me the hard way that I need to just back off and let him learn at his own pace.  Until I read this book, it didn’t even occur to me that my need to “finish” has more to do with my own schooling because the stopping points are often very arbitrary if you look at them in the grand scheme of things.

She expressed in the book that one of the hardest things to deal with as an unschooling parent, is that we were raised with the drive to test, to see if the student knows the “appropriate” amount of information.  She talks about trying to sneak in assessing where they were in conversations and how it sometimes backfired on her.  Well, add another level to that…a person who can’t really talk about things.  Trying to figure out what he knows is a delicate balance between figuring out whether he is struggling to find the answer or if he already knows it and is bored with you asking and starting to make a game of it. 

It is also particularly difficult to let them follow their interests when it is so difficult for us to easily understand what his interests are with accuracy.  Sometimes it is pretty hit and miss to find things that hone in on exactly what part of something interests him.  For instance, he LOVED Tacky the Penguin.   So I thought that meant he liked penguins.  He liked looking at them in the zoo, he enjoyed looking at books about them, he enjoyed some of the other books in the Tacky series, but then some of them really didn’t hold his interest at all.  He was mildly interested in the other things we did to expand on “Tacky”, but nothing that just lit his love for learning.  After a while, he wasn’t as interested in Tacky either.  We let it set for a while and moved on to other things, and 6 months later, he was interested in reading Tacky again.  This time we didn’t mess with it, just let him enjoy Tacky just for fun. 

I am having a hard time with this.  He simply won’t allow me to just have a typical curriculum. (a school-in-a-box type approach) He just won’t do it.  He will allow himself to be pushed a bit, but there is no way we can follow a typical curriculum schedule with him.  He demands a more unschool type environment to learn.  He learned to read and do math basically with us just facilitating.  He took the lead and it worked the way it supposed to work.   A natural interest lead to genuine learning. 

However, he didn’t learn to talk the normal way.  You know…the one big argument most unschoolers use…that they learn to walk and talk on their own and parents just facilitate learning and unschooling is just an extension of that.  Well, it requires a huge amount more faith when they didn’t learn to talk on their own.  And he is still struggling with talking, both the mechanics (motor planning) and the language aspect of it.  He gets math and reading, but is still struggling with basic communication.  It is incredibly challenging to figure out how to help him learn when he can’t communicate what he is interested in and what he wants to learn more about with the ease most of us take for granted.  Even if he knows, it is hard for him to get the message to us.

I wish there was somebody I could go to who could give me advice on how to do all of this, but it is pretty clear that I am just going to have to figure this thing out, step by step, with a huge amount of patience and faith.  I hope I am up to the task.

btw..the book is fabulous.  I liked it so much I am hoping to add it to my collection because I can see myself referring to it again.

posted in Autistic Life, Books, Homeschool | 6 Comments

11th November 2007

Church & Snifflies

Both the kids have runny noses.  I was hoping it was just allergies, but Zane seems to be getting worse, so I think it is actually “sick” and not allergies now.  Fun.

Church went fairly well.  Zach was a little irritated with all the singing.  The singing ran over and cut the sermon short which really annoyed him.  There were supposed to be 12 points, and he barely got through 4.  Zach said it was like there was too much appetizer and then the waiter snatched away the entree just as he was getting started.  lol.   On the up side, it took 3 Sundays to have “too much song and dance” instead of it being the first Sunday.  We have gone to several churches where the first Sunday we showed up it was a “special” Sunday and was all song and dance.  It was a frustrating coincidence.  Trying to get him to go back to a church with no sermon is even harder than getting him to go to the dentist.  At least this time he knows it isn’t how every Sunday goes and he does really like the sermon and the pastor, it was just too short.

Zane did fairly well in Sunday School, but about 10 minutes into the Children’s Church he was wanting to lay down on my lap and not really do much after that.  He was able to keep it together enough to participate sometimes and he didn’t actually meltdown, so that was good.  When we went back up to the sanctuary for the end of church he just laid across my lap and wanted to be carried out at the end of church.  At home, he went straight to the loveseat and just laid there, drained. 

Zora was clingy for most of the Sunday School time period and just starting to play right before church, but seemed to have a lot of fun once she warmed up.  At home, she is clearly tired, but can’t get to sleep because of her nose and sinus drainage.  This could be a very long day.  *sigh*

—————–

eta:  The really frustrating part, for me, is that Zach is a musician.  He has a beautiful singing voice, and can easily sing everything from tenor to bass.  His voice is rich with beautiful projection.  He has ZERO interest in singing in a choir right now (I asked him if he would enjoy the music more if he was singing instead of just passively listening).  I wish I knew a way to rekindle his love for music in this form.  He said that he used to love the music part of the service and doesn’t understand himself why it annoys him so much now…just feels like it is a tedious waste of time while he waits for the “good stuff”.   Us humans are complicated and unpredictable creatures, aren’t we.  *sigh*

posted in Autistic Life, Church, Zane, Zora | 3 Comments

8th November 2007

Holiday Helper 2007

The Holiday Helper Database: 

http://www.shesdreamingindigital.com/holidayhelper/

 

The Canadian Holiday Helper Database: 

http://www.shesdreamingindigital.com/holidayhelpercanada/

 

The forum on MDC:

http://www.mothering.com/discussions/forumdisplay.php?f=430

 

The main thread on MDC: 

http://www.mothering.com/discussions/showthread.php?t=786498

posted in Uncategorized | 2 Comments

6th November 2007

Whatever

Life is just rolling along at a nice click.  Our serious cash flow issues are temporarily abated by my mom helping load our (aptly named) “freeloader” card for Walmart/Sams, so we can afford gas and food for the next two weeks and one of our bills being able to be moved to after the paycheck.  Whew!  Thank goodness for the loan, it really helps.  I can make it stretch enough.  Zora has a lightweight coat that should suffice for the next two weeks until payday (unlikely to get super cold, and in a pinch, she is still little enough to use a blanket if necessary), and one pair of non-sandals that was a hand-me-down from Robert’s girl that still fit.  So, crisis abated.  Last summer of no paycheck is still impacting us.  If we hadn’t incurred that debt, we would be just fine, but paying back the loans from the summer and kids growing out of clothes, and our therapy costs going up a bit (because we make more this year…sliding scale) has thrown a wrench into things.  It should loosen soon though. 

I am still struggling a bit with balancing home schooling and housework.  It seems like I can do either one or the other, but am having a hard time managing both at once right now.  Part of the problem is that when I am working with Zane on school stuff, Ms. Destructo is undoing the “clean” at an astonishing pace.  I know this will get better, but housework has always been something I struggled with.  I have a touch of OCD, and I really have had to come to terms with being able to start something even if I am not sure I can finish it to my satisfaction.  Before kids, our house was often just this side of squalor.  I never felt like I could get it clean enough and was so overwhelmed I just froze up.  The depression helped perpetuate the cycle.  Since kids I have gradually gotten better, to where I still wouldn’t be thrilled if somebody showed up unexpectedly, but it usually is just cluttered, not a total disaster zone.  However, I haven’t quite got the balance of keeping things clean while homeschooling.  Zane can’t really self-direct yet, so if I am working on school stuff for him, almost everything that keeps Zora from going ballistic involves a mess to a degree…even if she is at the table.  She loves messing with the school supplies, but it usually involves a lot of dumping and after a bit, tossing items to the ground.  If she isn’t on the table, she is dismantling cabinet contents in the kitchen, dumping every toy, dragging laundry all over the house, or taking apart bookshelves.  Or she keeps bringing me food that isn’t edible (like bags of rice and beans) and gets mad that I won’t open them for her.  It is a little crazy some days.  I know it will get better with time, but I haven’t really got the knack yet.

At the end of ST yesterday (which Zane is doing really well at), while watching the kids play with the hallway toys, I was chatting with the clinical educator for a while about church & SNs (she is Catholic and I found out one of her brothers is an Archbishop working with the Pope…how cool is that) and what a challenge it is to attend church, and the difference in how churches approach SNs (most say that all people are welcome, but very few actually make it actually possible) and the respite care program at our church.  She knew the person who started the respite care program from when she used to work in a neighboring school district and was really pleased to hear the program had gotten off the ground.  She talked a bit about how her church handled some of the issues too.  It was a great conversation.  To this point I had really avoided talking much “church”, but since the program is simply run by churches, but more of an interdenominational and inclusive effort (you only have to have a SN to use the program, you don’t have to be any particular faith, or any faith for that matter, to use the service) I wanted to hear if she had heard anything about it.  (It is a rare thing for her to have NOT heard of something like this, and if you know her well enough, she won’t mince words about her opinion of how a program is run)  So, her having a positive opinion really holds some weight with me. 

On a funny note, when we were wrapping up our conversation and getting the kids herded to the door, as Zane left out the door we did the usual “goodbye” and his response, after prompting him to say “goodbye” louder instead of mumbling was “whatever” as he was walking away.  I suppose we should have been dismayed, but both of us were looking at each other with our jaws on the carpet, she went up to him to get him to say it again, and instead of repeating “goodbye” he repeated “whatever” and both of us laughed and shook our heads in amazement.  It was such an unexpected expression.  I suppose if it continues we will have to work on it, but for the time being I am just enjoying the novelty and self-expression of it.  Wonderful!

posted in Autistic Life, Clean/Organize, Homeschool, Money, ST | 3 Comments

  • Zane's age

  • Zane is 22 years, 3 months, and 29 days old
  • Zora's age

  • Zora is 18 years, 4 months, and 2 days old
  • Random Quote

  • Lord, make me an instrument of your peace. Where there is hatred, let me sow love; Where there is injury, pardon; Where there is discord, union; Where there is doubt, faith; Where there is despair, hope; Where there is darkness, light; Where there is sadness, joy. — St. Francis of Assisi

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